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Two young boys in UPS for Downs marathon shirts watching runners along the race route

Nonprofit · Disability services · Arts & culture · Family & PFLAG

UPS for Downs

Schaumburg, IL · Serving Schaumburg and the greater northwest Chicago suburban area

Serves Individuals with Down syndrome, their parents, siblings, and extended families in the northwest Chicago suburbsDisabilityRegistered nonprofit

United Parent Support for Down Syndrome, known as UPS for Downs, is a parent-directed organization providing encouragement, educational resources, and social opportunities across the northwest Chicago suburbs. Founded in 2004, the organization champions community acceptance by sharing the potential, creativity, and accomplishments of individuals with Down syndrome through all stages of life.

Family support programs provide vital guidance from early diagnosis through adulthood. New and expectant parents connect with experienced mentor families who offer compassionate perspective, hospital visits, and comprehensive informational packages. Sibshops offer dedicated peer support workshops for brothers and sisters of individuals with developmental disabilities. Educational seminars and parent nights out create welcoming forums where caregivers discuss school accommodations, therapy approaches, medical updates, and transition planning.

Social and creative enrichment flourishes through age-based clubs and community programs. The organization coordinates social groups for children, teens, and adults, alongside a community walking club and Next Chapter Book Clubs. The UPS for Downs Theatre Company stages full-scale annual musical productions featuring cast members with and without Down syndrome, creating inclusive performance opportunities for regional actors.

Athletic participation and literacy initiatives further enrich the community. The charity endurance team trains athletes to complete marathons and half-marathons while raising funds and awareness for inclusive community initiatives. Meanwhile, the Katie MacDonald Literacy Project distributes specialized learning materials, books, and educational grants to local schools and community partners.

Get help

Families can contact the Schaumburg office by phone or email, or submit an inquiry through the website to connect with parent mentors and join clubs.

Services and resources

Get involved

Volunteers can assist backstage at theatre productions, support social club outings, run with the endurance team, or contribute financially online.

Programs and services

  • Katie MacDonald Literacy Project

    Provides specialized learning materials, books, and educational grants to schools and community partners.

  • UPS for Downs Theatre Company

    Inclusive community theatre ensemble producing theatrical performances featuring actors with Down syndrome.

  • Social Clubs

    Age-appropriate recreational and social groups including kiDs Club, Senior Teen Club, and Adult Social Club.

  • Sibshops

    Peer support and fun interactive workshops tailored specifically for brothers and sisters of individuals with special needs.

  • Endurance Team

    Charity athletic team participating in the Chicago Marathon and regional races to promote disability inclusion.

  • Next Chapter Book Clubs

    Community-based reading groups where adolescents and adults read and discuss literature together.

Compiled from UPS for Downs’s own website and public filings. Last checked October 2, 2026. Something out of date? Send a correction.

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